April 19, 2008

  • Buggered

    Well my dearies, I AM really having a tough time of it lately and spend most of my life sleeping. The past 2 weeks have been just rotten with medicine side effects and lingering meningitis illness.  I have lost several pounds again as well.

    I have not been on Xanga lately because most of my life is dealing with sickness and the like as of late. For that reason I have been updating my blog and writing on the discussion boards on dailystrength.org much more frequently. If you would like to keep up with my woes I direct you there, I just haven't the strength to do both.  If you want to live happily and cheerily I recommend you skip ME completely, I'll just bring you down!

    The med I was taking, Atripla fucked me up really bad and I had to quit because of it. The poem I wrote the other day was based on an experience I had while taking that med, you can read about it here.  My HIV doc then gave me a script for Truvada and now the rash on my body is out of control and feels like pins and needles. I have been ordered to stop that med now too.

    I'm just a sad sack lately.

    I used to be so gosh darn lively and full of happy thoughts, now it's all I can do to even take a shower. My doctor also mentioned another spinal tap too...oh no, I just cannot deal with that trauma again. PLEASE NO!!!

    I appreciate your prayers it's about the only hope I have anymore.

    BE WELL.

Comments (4)

  • I wish I had something to say that could help.

    That's a crime that your prescribed medication is foreign to your pharmacist, incredibly expensive, and causing you such bad side effects that you can't take it anyway. I'm so sorry.

    I'm thinking about you and wishing you strength.

  • Nice pout ya has on in that last pic....... And wtf is that orange thing on the table?.... Looks like a glow-lung....

    Wishes you'd've run into some poison ivy to get that rash... Have not wished anything like that before on anyone.........

    Will keep my distance from ur distant writings.... You has enough on ur plate without worrying about what I might say there..... :->

    A bwain walks into a baw.......... and orders a beer......... Barkeep says... "I'm not serving you...... ur outa ur skull."

  • no one deserves this.
    no one.
    and i'm sad.  that you're suffering, that you're sad, that you're having to fight this.
    and i wish i could give you a hug.
    and fix you something to eat that would taste "decent" and stay down and put a smile on your face.

    when i think of you i always think of your mischevious smile, the light in your eyes, the love for your animals and your people, your trailer, your henna and beads, your king of the mountain wisconsin winter style.  always will think of you that way.  no matter what.
    and i hate anything that takes that away from you.
    or threatens to take it away from me.

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What?

I AM still paranoid,
though reasons changed.
I'm paranoid that they'll figure out the language
and patterns of
me,
and I'll forget to rea
r r
ange.

Then I'll just be textbook.